Welcome to Plan for Rare Foundation
All Rare Disease Deserve Drug Discovery Strategy

Our Vision

Low-income foundations focusing on rare diseases should have the same scientific support and opportunities as other larger organizations that can afford a considerable investment in research and drug discovery strategy.

finding a cure, where to start

To accelerate the development of appropriate therapeutics in your disease. Understand the process of drug discovery and development. Perform analysis of research status, gap identification in your disease area. Build a roadmap to pharma for your specific fields by providing comprehensible scientific and strategic advice. Gather stakeholders, government, industry and academic support. Use the help from umbrella organizations.

What We do

Inform you of the process
Build your road map to pharma
Perform Analysis of your Field
Increase patients volume
Educate your community, ARTOS 4 kids
Plan for Rare foundation educates and guides young rare and ultra-rare disease foundations in the process to get to drug development. We prepare them to identify and get the appropriate pre-clinical and clinical tools to be ready to interact properly with the FDA and the biotech/pharmaceutical industry.

Young low-income foundations often don’t know where to start besides helping to their best the few scientists and doctors they know in the field of their disease. The foundations' goals are primarily to find a cure but lack the knowledge of drug discovery readiness, and at times, the basic scientists they work with genuinely don’t know either.

We help the foundations with performing a landscape analysis so they can be ready for translating great science into patient benefit.

We want to bring specially designed toolboxes to them, including:

Interaction-collaboration toolbox (understand the process, who are the stakeholders, when to start interacting, establish a balanced portfolio).

Preclinical toolbox (cellular models, appropriate animal models, cellular assays compatible with middle to high throughput screening).

Clinical toolbox (natural history, endpoints, standardization of measures, any type of registry).

Expansion toolbox (expansion to other rare diseases with similar mechanisms and/or endpoints, interactions with foundations from other continents).


Partnering to go faster

  • Andrea Taylor, President/Founder of A Twist of Fate-ATS and Jade Day, vice-president are partnering with Armelle Pindon, President of Plan4Rare for a better strategy in Arterial Tortuosity Syndrome.

Network & Accreditation

Plan for Rare is a 501c3 foundation, Non-for Profit. Copyright © 2020 Plan for Rare, INC. all rights reserved.
Contact US
Address
20 Woodland Terrace, Yonkers, NY 10701, USA